AADM.org Privacy Policy

The Academy of Aid-in-Dying Medicine (“Academy,” “we,” or “us”) respects your privacy and is committed to protecting it through our compliance with this policy.

This policy describes the types of information we may collect from you or that you may provide when you visit the website located at AADM.org (our “Website”) and our practices for collecting, using, maintaining, protecting, and disclosing that information.

This policy applies only to the collection, use, disclosure, and protection of data or information collected through the Website and does not apply to any other data or information collected by us online or offline except to the extent expressly referenced in this policy or to the extent this policy is expressly incorporated by us, such as by internet link on a website or presentation or display to users in the course of providing services. Users and visitors to the Website are subject to the terms, conditions, and provisions stated in this policy and any other relevant terms, conditions, policies, or notices posted or included on the Website. In particular, please note that this policy does not apply to the Academy Listserv, located at HTTPS://GROUPS.GOOGLE.COM/G/ACAMAID, which is governed by the privacy notice linked therein.

This policy does not apply to information collected by any third party, including through any application or content that may link to or be accessible from or through the Website.

Please read this policy carefully to understand our policies and practices regarding your information and how we will treat it. If you do not agree with our policies and practices, your choice is not to use our Website. By accessing or using this Website, you agree to this privacy policy. This policy may change from time to time (see Changes to Our Privacy Policy). Your continued use of this Website after we make changes is deemed to be acceptance of those changes, so please check the policy periodically for updates.

Personal information includes information that identifies, relates to, describes, or can be associated with you.

Information You Provide

Our Website includes several screens and other options for you to provide us personal information, including:
· Basic contact information, such as first name, last name, email address, telephone number, and/or other contact information. For example, this may include information you provide in signing up for our Listserv. When you provide us your contact information you are consenting to our use of this contact information to send you communications.
· Information you supply on the Patent Intake Form or Patient-to-Attendant Intake Form, each located on this Website, for our use in providing you a referral to a physician or attendant, which may include information such the following (subject to change): patent name, date of birth, age, gender, terminal illness, patient address, patient direct phone number, patient direct email address, name and contact information of the person filling out the form, and information about the patients medical condition and treatment history.
· Payment and billing information and information you provide to make a donation.
· Information concerning your profession, licenses when completing the membership form.

We collect this information directly from you when you provide it to us on our Website or through our Membership form.

Information We Collect Automatically

As you navigate through and interact with our Website, we automatically collect certain information about your equipment, browsing actions, and patterns, including:
· Details of your visits to our Website, including traffic data, location data, logs, and similar data concerning your use of the Website.
· Information about your computer and internet connection, including your IP address, operating system, and browser type.

The information we collect automatically helps us to improve our Website and to deliver a better and more personalized service.

The technologies we use for this automatic data collection may include:
· Cookies (or browser cookies). A cookie is a small file placed on the hard drive of your computer. You may refuse to accept browser cookies by activating the appropriate setting on your browser. However, if you select this setting you may be unable to access certain parts of our Website. Unless you have adjusted your browser setting so that it will refuse cookies, our system will issue cookies when you direct your browser to our Website.
· Web Beacons. Pages of our Website and our emails may contain small electronic files known as web beacons (also referred to as clear gifs, pixel tags, and single-pixel gifs) that permit the Academy, for example, to count users who have visited those pages or opened an email and for other related website statistics (for example, recording the popularity of certain website content and verifying system and server integrity).

We use personal information that we collect about you or that you provide to us for the following purposes:
· To present our Website and its contents to you.
· To provide you with referrals, information, products, or services that you request from us.
· To fulfill any other purpose for which you provide it.
· To provide you with notices about your account/membership, including expiration and renewal notices.
· To carry out our obligations and enforce our rights arising from any contracts entered into between you and us, including for billing and collection.
· To notify you about changes to our Website or any products or services we offer or provide though it.
· To maintain reasonable security to diagnose issues with the Website and detect, investigate or correct fraudulent, illegal or malicious activity.
· In any other way we may describe when you provide the information.
· For any other purpose with your consent.

We may also use personal information to create aggregate or de-identified data that is not personally identifiable for any legally permissible purposes without restriction.

We may disclose personal information that we collect or you provide as described in this privacy policy:
· To physicians and attendants for the purposes of making a referral that you request.
· To contractors, service providers, and other third parties we use to support our business and who are bound by contractual obligations to keep personal information confidential and use it only for the purposes for which we disclose it to them.
· To our website vendors for analytics purposes.
· In connection with a business transaction such as a merger, acquisition, or bankruptcy.
· To fulfill the purpose for which you provide it.
· For any other purpose disclosed by us when you provide the information.
· With your consent.
We may also disclose your personal information:
· To comply with any court order, law, or legal process, including to respond to any government or regulatory request.
· If we believe disclosure is necessary or appropriate to protect the rights, property, or safety of the Academy, our members, or others.

We may disclose aggregated information about our users, and information that does not identify any individual, without restriction.

State consumer privacy laws may provide their residents with additional rights regarding our use of their personal information. To the extent we may be subject to a state consumer privacy law, residents of any such state may (now or in the future) have the following rights:
· Confirm whether we process your personal information.
· Access and delete certain personal information.
· Correct inaccuracies in your personal information, taking into account the information’s nature processing purpose.
· Data portability.
· Opt-out of personal data processing for:
· targeted advertising;
· sales; or
· profiling in furtherance of decisions that produce legal or similarly significant effects.
· Either limit (opt-out of) or require consent to process sensitive personal data.

Additionally, you can choose to set your browser to remove or reject Cookies by adjusting your browser settings, depending on the browser you are using.
The exact scope of these rights may vary by state, and your rights may be subject to certain limitations. To exercise any of these rights, or appeal a decision regarding a consumer rights request, please contact us as shown in the Contact Information section below.

If you are located in the European Economic Area (“EEA”) or the United Kingdom (UK), your Personal Information may be protected by data protection laws in the EEA or UK, such as the European Union General Data Protection Regulation (GDPR). We will comply with applicable data protection laws when it uses and shares your Personal Information as described in this Policy.

When using or sharing your Personal Information as described in this Policy (including transfers out of the EEA and UK described below), We rely on the following lawful bases, as appropriate:

• Where you have provided consent to the processing of your Personal Information for one or more specified purposes. Subject to limitations under applicable law, your consent may be withdrawn at any time in the manner specified by us when we obtain your consent. However, withdrawal of consent will not affect the legality of our processing based on consent prior to such withdrawal.

• Where processing is necessary to fulfill a contract or to take steps prior to entering into a contract.

• Where processing is necessary to comply with legal obligations.

• Where processing is necessary to protect a person’s vital interests.

• Where processing is necessary for the performance of a task carried out in the public interest.

• Where processing is necessary for the purposes of the legitimate interests pursued by us or a third party, except where such interests are overridden by the interests or fundamental rights and freedoms of the individual whose Personal Information is processed.

As a result of our operations in the United States, your Personal Information may be processed by us in the United States. We may contract with service providers to process your Personal Information on our behalf, which service providers may be located outside of the EEA and UK.

Data protection laws in the United States or other countries may not offer you the same protections as the laws of the country in which you are residing when your Personal Information is collected. By using this website and by submitting your Personal Information to us, you consent to the transfer of your Personal Information to any country and its use and disclosure in accordance with applicable U.S. federal and state laws and this Policy.

Data protection laws in the EEA and UK may provide you the following legal rights with respect to your Personal Information used and shared by us:

To withdraw consent at any time, if we are using and sharing your Personal Information on the basis of consent.
• To access the Personal Information that we have about you.
• To request that we rectify or erase your Personal Information.
• To request that we restrict the way that we use or share your Personal Information.
• To object to the way that we use or share your Personal Information.
• To ask us to transfer your Personal Information to someone else.
• To lodge a complaint with a data protection authority in the EEA or UK.

Our ability or obligation to comply with your requests may be limited by applicable law. If you are located in the EEA or UK, please contact data.protection@shionogi.com. to request to exercise one of these rights.

Our Website is not intended for children under 18 years of age. No one under age 18 may provide any personal information to or on the Website. We do not knowingly collect personal information from children under 18. If you are under 18, do not use or provide any information on this Website or through any of its features, or provide any information about yourself to us, including your name, address, telephone number, email address, or any screen name or user name you may use. If we learn we have collected or received personal information from a child under 18 without verification of parental consent, we will delete that information. If you believe we might have any information from or about a child under 16, please use the contact information below (see Contact Information).

The safety and security of your information also depends on you. Where we have given you (or where you have chosen) a password for access to certain parts of our Website, you are responsible for keeping this password confidential. We ask you not to share your password with anyone. The transmission of information via the internet is not completely secure. We cannot guarantee the security of your personal information transmitted to our Website. Any transmission of personal information is at your own risk. We are not responsible for circumvention of any privacy settings or security measures contained on the Website.

This policy may be supplemented or amended from time to time by “Privacy Notices” posted on this Website. These Privacy Notices provide a level of detail that we cannot provide in this more general description of our privacy practices. For example, certain pages of this Website may contain Privacy Notices providing details about the personal information we collect on those pages, why we need that information, and choices you may have about the ways we use that information.

We may make changes to this Privacy Policy from time to time. The date the privacy policy was last revised is identified at the top of the page. You are responsible for ensuring we have an up-to-date active and deliverable email address for you, and for periodically visiting our Website and this privacy policy to check for any changes.

To ask questions or comment about this privacy policy and our privacy practices, contact us at: AADM@AADM.org.